Tuesday, January 19, 2010

Good news from Ann Arbor

Claire's opthamology exam, x-ray and echocardiogram were all good/clear. No sign of anything wrong through any of those tests. They're still waiting for the results of the JAG sequencing part of her blood test but are expecting that will be normal too. It's not Alagilles. Her blood was also run for her liver panel again. Her total bilirubin has gone down (to 5.4) and her direct/conjugated bilirubin has gone down (to 4.1). This is all great news.

So now we just get blood draws (for the liver function panel - checks enzyme levels and bilirubin levels) every two to three weeks until we go back to see Dr. Bhatt on March 5. If her numbers are going up, we'll get draws every two weeks and Dr. Bhatt will rethink her plan. If her numbers stay the same or go down, we get draws every three weeks. Claire's next blood draw is January 29. Fortunately, we can get these done in Midland and they send the results to Ann Arbor.

I don't know what all of this means in terms of finding out what is wrong with Claire's liver. I am preparing questions for Dr. Bhatt and plan to call her soon to get more info. In the meantime, I will enjoy the good news we received and enjoy my baby girl. At least we're getting confirmation that so much of her body/health is perfect!

2 comments:

Tina said...

That's great news!

It was so good to see you on Saturday! Let me know what your schedule is for the next few weekends, and maybe we could have you guys over soon!

Have a great day and enjoy the good news from Ann Arbor!

Tina

Mimi said...

It was great to have Brian, Lauren, and Claire visit today. Claire is so alert, and I love to see her smile. I just hope and pray that her numbers will just keep going down. The last two months have been a nightmare for all of you. We are all thankful that some very serious conditions have been ruled out. Now, I hope that Ann Arbor can tell you what the problem is and FIX IT. You all need to have life return to normal. I will keep Claire and everyone in my prayers.

Love,
Mimi