I got the results of this morning's blood tests. Claire's numbers are going up. To Ann Arbor we go.
We have to be at the hospital at 7:30 tomorrow morning. She'll be admitted at 8. She'll be hooked up to an IV so she can get sugar water to keep her hydrated (she can't eat after 8am). She is scheduled for a liver biopsy at 2pm. When they take her back for the biopsy, they'll do an ultrasound as well.Claire will have to be anesthetized for the biopsy. Due to this, they'll keep her at least overnight. Her doctor said they may keep her two nights (depends on how she reacts to the anesthesia and if they determine she needs more tests or not). That will be determined after the biopsy tomorrow. Even ordered rush, the biopsy results take about two days to get back. So we should have those Thursday. If the biopsy shows biliary atresia, she will basically be immediately scheduled for a cholangiogram (would probably have that on Friday). If the cholangiogram confirms biliary atresia, the doctor would do another procedure (called "The Kasai procedure") right then. Recovery in the hospital for this is usually 7-10 days.
So I'm heading to Ann Arbor with Claire in the morning and will be there anywhere from one night to a week and a half. At my insistence, Brian is staying home with the other kids for now. They need some sense of normalcy as long as we can provide it. Pending the results of Claire's biopsy, Brian will head down to Ann Arbor later this week. Don't think Brian doesn't want to be there... he does. But those of you who know me know how stubborn I am and I really want him in Midland with the kids for now. I'm taking a laptop to Ann Arbor with me. I'll update as I can.
Thanks for all of the prayers and support.
Deanna
Monday, January 11, 2010
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1 comment:
Oh man...I was so hoping for better news.
I am sorry that you have to take the trip to Ann Arbor, but I know that Claire will be very well taken care of there! If there is anything we can do to help, please let us know!
Praying for a safe trip, no problems during tomorrow's procedure, and peace for you and Brian.
Tina
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